Sleeping Beauty

For all you who were specifically praying that Bernadette would straighten out her days and nights, I thank you.  Maybe it was just as much Mommy and Daddy (Ok.  mainly Mommy)  who needed straightening out and to remember how to be parents. It’s truly amazing how I can lose sight of common sense when dealing with a terminally ill child!!!!  I’ve been noticing that lately, yet feel somewhat powerless to do much about it, in my effort to put her comfort and happiness above what she ‘should’ be doing.   I don’t know.

All I do know is neither of us have done a night shift for three nights now and she’s slept.  I told Bernadette when her dad got sick that if she didn’t like who was staying with her during the night then maybe she should try sleeping all night and being awake in the day.   Unfortunately she was not impressed when Grandma did a night shift and when she was awake she played quietly or tried to sleep.  Joseph has done two night shifts now and it certainly didn’t look like any parties were going on.  The first night Joseph said they both slept and were up early, by 7:30am.  Bernadette then proceeded to stay awake all day except for a short nap at noon.  She had a great morning and was looking forward to trimming the tree (a week early this year in an attempt to boost her morale) but by evening she was in pain and tired and ended up just watching.   She slept most of the evening and then returned to her bed around 10:30pm and slept some more. When I went down there this morning it looked like neither Joseph nor Bernadette moved all night.

Maybe this is the beginning of night being night and day being day.  We’ll have to wait and see.  All we know for certain is Marc and I are extremely appreciative of Joseph taking over the night shift for now.  And for everyone’s prayers of course.  🙂